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Mission And Background
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History And Milestones
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Board Of Directors
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Staff
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Professional Advisory Board
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Scientific Advisory Board
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Annual Report and Financials
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Archived Press Releases
06.09.08 Children’s Hospital Boston and Brigham and Women’s Hospital to Host 24th Annual National Marfan Foundation Conference, July 10-13, 2008
05.08.08 Old Drug Offers New Hope, segment on National Public Radio
04.30.08 Heartworks Gala Raises $1 Million for NMF Programs
04.01.08 National Marfan Foundation Benefit to be Held on April 17 at Cipriani 42nd Street
06.19.07 Stanford University School of Medicine to Host 23rd Annual National Marfan Foundation Conference, July 12-15, 2007
05.21.07 Heartworks Gala Raises $1.1 Million for NMF
05.21.07 New Resource for Nurses to Recognize Aortic Dissection in Emergency Situation
04.03.07 Ann Reinking to be Honored at
National Marfan Foundation Benefit on April 30
01.24.07 Breaking News: Losartan Has Impact on Muscle Wasting in Mice with Marfan Syndrome and Muscle Degeneration in Mice with Duchenne Muscular Dystrophy
12.18.06 National Marfan Foundation Offers New Booklet
for Teens with Marfan Syndrome
10.02.06 Aretha Franklin to Perform in New York City
03.15.06 NMF HeARTworks planned for April 18
01.11.06 Nominations Sought for 25th Anniversary Volunteer Recognitions
12.27.05 NMF Mourns the Loss of its Honorary Co-Chair, Vincent Schiavelli
10.26.05 Marfan Syndrome Community Benefits from the Legacy of Jonathan Larson, RENT Playwright
08.19.05 Jonathan Larson, the Marfan Syndrome and the NMF’s Emergency Medicine Campaign
07.13.05 NMF to Partner with Barnes Jewish Hospital to Host 21st Annual NMF Conference
07.12.05 www.marfan.org receives a 'Webby Worthy' Distinction
10.01.04 NHLBI Approves National Registry of Patients with Aortic Dissection: People with the Marfan Syndrome will be a Focus
05.10.04 New Brochure Addresses Obstetric Issues Related to the Marfan Syndrome
09.29.04 McKusick, Dietz Honored
09.10.04 Ritter lawsuit once again raises concerns about proper diagnosis of Aortic Dissection
06.09.04 Cedars-Sinai Medical Center to Host 20th Annual NMF Conference, July 7-10, 2004
01.17.03 New Study Reveals Dramatic Increase in Life Expectancy for People With Marfan Syndrome
10.04.01 TV Tragedy on 'ER' Too Often Imitates Reality: National Marfan Foundation Working to Save Lives Otherwise Lost in Emergency Departments
07.12.03 Loyola University Health System to Host 19th Annual National Marfan Foundation Conference, July 9-12, 2003
12.03.03 National Marfan Foundation, Port Washington, Home to First Permanent Positive Exposure Display on Long Island
12.03.03 National Marfan Foundation Opens New Port Washington, NY, Headquarters
02.02.04 National Marfan Foundation Launches New Web Site Offering Easy-to-Access Information on the Marfan Syndrome for Medical Professionals and Lay People
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