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Meet our Network Group Co-Leaders
| Michele Perlotto |
I became familiar with the National Marfan Foundation (NMF) in 1996 when I was diagnosed with Ecopia Lentis. Since that time, other members of my family have been diagnosed, too. I decided to help co-lead this group because it is very important to educate our community on Marfan Syndrome and related disorders. I come into this new opportunity from a Practical Nursing and Social Worker background. I feel the skills I've developed will help me co-lead successfully. |
| Catherine Sellas |
I have known about the NMF since late 1983 and was the co-leader, with my husband, of the Michigan group we formed in 1984. Our son Spencer was the only member of our family affected at that time. He dissected as an emergency in December, 1983. Spencer's three sons all have Marfan Syndrome and live in Florida. We moved to Florida three months ago to be with them and their mother Kristen. We wish to help others and also to distribute information to emergency rooms and doctor's offices in the area.
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Contact Information
Description of the Group
The NMF Tampa Area Network Group is a local meeting of the National Marfan Foundation that servers members in the area by providing connections with peers, education on Marfan Syndrome and related disorders, support for affected individuals and their family members, as well as ways to reach out and improve awareness in the community. We also do fundraising to support NMF programs which, in turn, serve our members.
Meeting Location
Meetings will be held every other month on the second Tuesday from 6:30pm to 7:30pm at the home of Dr. Nicholas and Catherine Sellas, 3247 San Jose Street, Clearwater, FL 33759. Meeting notices will be sent by email at least two weeks prior to each meeting.
We are easy to find: North of Route 60 (Gulf to Bay) between McMillan Booth and Bayshore.
Click here for a map.
Upcoming Meetings and Events
May 8, 2012, 6:30pm-7:30pm, Tampa Area Network Group meeting (details)
Announcements
The group meetings are an opportunity to meet area members, to discuss the types of projects we would like to get involved in to raise awareness about Marfan Syndrome and related disorders, and to develop other future plans for the group.
Network News
Future home of group photos.
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