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Southcentral PA Network Group
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Cindy Strupp Our son, Chris was diagnosed with Marfan Syndrome at age 2 and is the only family member affected. Chris has been through aortic surgery and spinal fusion surgery. The NMF has been a great resource for us in learning about Marfan Syndrome, and we would be glad to share any experiences with anyone needing information. We encourage you to become involved in a local connecting group.
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Jennifer Hawbaker. After being a local support contact for the NMF for several years, it was a natural next step to join with my neighbor Cindy Strupp in forming a Carlisle-area local networking group. Whether you would like to be a part of that group or just want to connect with someone who can relate to your experiences, please write or call. The NMF has provided us with a wonderful opportunity to share information, offer support, and help increase awareness about Marfan syndrome. |
Meet our Network Group Leaders
Contact Information
Contact: Jennifer Florer
Phone: (717) 398-2474 or (717) 350-5568
E-mail: jen.florer@gmail.com
Contact: Cindy Strupp
Phone: (717) 249-9374
E-mail: Timandcindy1935@comcast.net
Description of the Group
The NMF Network Group of Southcentral Pennsylvania is a local meeting of the National Marfan Foundation. We meet on a social, information-sharing, supportive basis. The group first met in 2005. More than 30 people attended that first gathering, and we hope to keep the momentum going.
Meeting Location
Meetings have been held mainly in Carlisle to date, but may move around the area to better accommodate everyone who would like to attend
Dates of Future Meetings and Events
If you are new to the NMF, we may not have you on our local mailing list. So, please contact us right away with your email, mailing address and phone number, and you will be notified about our next gathering.
Current Information
Coming soon: The Southcentral PA Network Group's Fall Picnic 2010! Check back for details.
*** If you know of a health-related event we could attend to help spread the word about the Marfan syndrome, please contact Cindy or Jennifer. ***
Want to help spread the word? Opportunities include working with hospitals to encourage continuing education about Marfan for emergency room physicians and talking to school nurses to make sure they now the signs and symptoms to watch for in their students. Write or call us or the NMF to learn more.
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