Meet our Network Group Leader
Sheila Shawen. I live in Kettering, Ohio, with my husband, Gregg, and our two teenaged sons, Dayton and Oliver. Having led a National Marfan Foundation support group in Memphis, Tennessee since 1995, I was happy to help start the Dayton Area NMF Network Group when we moved here in 2004.
Dayton was diagnosed at three years old with Marfan Syndrome, and Oliver was suspected of having Marfan Syndrome for many years. Gregg, and I have felt so blessed to be able to rely on the National Marfan Foundation for information and support.
The National Marfan Foundation continues to be so helpful to us - in personal and practical ways, and in the hope for a better future through the NMF's funding of ongoing research. Being a part of such a giving organization is a gift in itself.
Contact Information
Contact:
Sheila Shawen
Phone:
(937) 293-7926
E-mail:
gshawen@woh.rr.com
Description of the Group
Our group is made up of a diverse group of people affected by Marfan Syndrome - some patients, some spouses, some parents, some married, some single, some older, some younger. We encourage anyone who would like to meet others on this journey to join us as we share practical knowledge gained from our unique experiences.
Meeting Location
We have held our meetings in varied locations in an effort to be more accessible to our members.
Our past meetings:
December 2005 - Kettering Library
February 2006 - Troy Hayner Cultural Center
May 2006 - Sinclaire Community College
October 2007 - Carillon Historical Park
April 2008 - Financial South Office Building
Dates of Future Meetings and Events
Coming Soon!
Announcements
Rita and Sandy Eisman volunteered at the NMF booth at the Clark State College Health Fair in Springfield, OH, on Wednesday, April 16, 2008. This is an annual event for Rita and Sandy, and it is a great way to spread the word about Marfan syndrome.
Current Information
Please continue to submit any additions or changes to our Local Area Medical Directory to Sheila Shawen (see above for contact information). We have a completed directory, but we would like to keep it updated. Thanks to all who have contributed!
