Following are various resources to help healthcare providers in the diagnosis and management of Marfan syndrome.

Letter and Checklist Referring Patient to a Specialist for Evaluation

Emergency Information Packet for Patients

Emergency Medicine Kit for Diagnosis and Treatment of Aortic Dissection

AHA/ACC Guidelines for Diagnosis and Management of Patients with Thoracic Aortic Diseas - March 2010

AHA/ACC Thoracic Aortic Disease Guidelines Slide Set - March 2010

Top Ten Things to Know about the New AHA/ACC Thoracic Aortic Disease Guideline - March 2010

Adult Nomogram

Pediatric Nomogram

Aortic Root Dilatation Nomogram

Overview of Emergency Diagnosis and Treatment of Aortic Dissection

Overview of Cardiovascular Management

Overview of Orthopedic Management

Marfan Syndrome: Need-to-Know Information for the School Nurse

Family Health History Template

NIAMS Spanish Language Fact Sheet for Patients- ¿Qué es el síndrome de Marfan?

Molecular Testing for Marfan Syndrome

Following are statements from the Professional Advisory Board (PAB) of the National Marfan Foundation on various topic of interest in treating patients with marfan syndrome

Endovascular Repair in Marfan Syndrome Patients

Fitted External Aortic Root Support

Guidelines for Establishing a Marfan Syndrome Clinic

2007 Revised Endocarditis Prophylaxis Guidelines, NMF Professional Advisory Board Statement
 

Following are several PowerPoint presentations from members of the National Marfan Foundation's Professional Advisory Board (saved as PDF files).  You may use these presentations to aid in your educational programs, but please be sure to credit the National Marfan Foundation and the individual physicians.

Diagnosis of Marfan Syndrome (Reed Pyeritz, MD, PhD)

Pediatric Issues in Marfan Syndrome (Hal Dietz, MD)

Marfan Syndrome- Orthopaedic Aspects (Paul D. Sponseller, MD)

Arrhythmias and Marfan Syndrome (Alan C. Braverman, MD

Cardiovascular Assessment and Monitoring (Richard B. Devereux, MD)

Taking Care of the Aorta (Alan C. Braverman, MD)

Emergency Diagnosis and Treatment of Aortic Dissection (Alan C. Braverman, MD, Richard B. Devereux, MD, Reed Pyeritz, MD, PhD, Joseph S. Coselli, MD) 

Surgery in Marfan Syndrome (Joseph S. Coselli, MD,  Scott LeMaire, MD, and Irina Volguina, PhD)