
Please check the NMF Calendar for upcoming events
Save The Date

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Attend workshops and medical presentations by world-renowned doctors and researchers.
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Make an appointment for a medical assessment at the Marfan Clinic (by appointment only).
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Bring your children and teens for a special fun-filled and educational weekend.
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Participate in the new Young Adults Program.
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Share experiences with others in the supportive environment that is unique to NMF conferences.
For further information and online registration, visit the NMF web site at www.marfan.org starting in February, 2012.
NMF Media Contact Information:
Thank you for your interest in Marfan syndrome. For immediate assistance, media may contact Eileen Masciale, Consulting Director of Communications, 631-665-2163, publicity@marfan.org
We can arrange interviews with leading experts on Marfan syndrome, as well as with individuals affected by the disorder. Electronic photographs are also available.
Media Kit:
Marfan Syndrome Q & A
Life Expectancy
Aortic Dissection: Facts & Figures
Press Releases:
01-23-12 Kevin Blinder, MD, Washington University School of Medicine, to be Honored at Heartworks St. Louis Gala, March 3rd
10-24-11 12th Annual Tommy Tant Memorial Surf Classic Presented by Nautica To Raise Awareness of Marfan Syndrome and Aortic Disease
06-22-11 Shriners Hospitals for Children and Oregon Health & Science University to Host 27th Annual National Marfan Foundation Conference, July 14-17, 2011
04-15-11 National Marfan Foundation Launches Mobile Site to Put Marfan Syndrome Diagnosis Directly into the Hands of Physicians.
04-05-11 National Marfan Foundation Benefit to be Held on April 7 at Cipriani 42nd Street.
02-01-11 Keith Bridwell, MD, Chief of Spine Surgery in the Department of Orthopaedic Surgery and Asa C. and Dorothy W. Jones Professor of Orthopaedic Surgery, and Lawrence Lenke, MD, Jerome J. Gilden Endowed Professor of Orthopaedic Surgery, Washington University School of Medicine, are the 2011 recipients of the National Marfan Foundation’s Hero with a Heart Awards.
08-12-10 Alan Braverman, MD, named chair of the National Marfan Foundation's Professional Advisory Board
07-01-10 New Diagnostic Criteria for Marfan Syndrome Published in Journal of Medical Genetics: New Guidelines Facilitate Accurate Diagnosis of Life-Threatening – but Treatable – Genetic Disorder
06-14-10 Baylor College of Medicine and University of Texas Science Center at Houston to Host 26th Annual National Marfan Foundation Conference
04-05-10 National Marfan Foundation Benefit to be Held on April 22 at Cipriani 42nd Street
03-16-10 New Coalition Launches Multi-Faceted Campaign to Maximize Impact of New Aortic Disease Diagnosis and Treatment Guidelines from American Heart Association, American College of Cardiology and Nine Other Professional Organizations; TAD Coalition Announces “Ritter Rules” to Heighten Awareness of Risk Factors, Symptoms, Urgency and Diagnosis of Aortic Dissection
03-16-10 From AHA/ACC: New Guidelines Aim to Prevent Unnecessary Death from Thoracic Aortic Disease; Multidisciplinary team of experts weighs in on diagnosis and management
02-01-10 February is National Marfan Awareness Month- Clinical Trial Participants Still Needeed
01-21-10 Gregorio Sicard, MD, to be Honored at Heartworks St. Louis Gala, March 6
07-13-09 Mayo Clinic to host 25th Annual National Marfan Foundation Conference, Aug 6-9, 2009
02-02-09 RENT: Filmed Live on Broadway Helps Raise Awareness and Saves Lives
02-01-09 February is National Marfan Awareness Month
10-06-08 NIH Launches New Web Site for Parents on Medical Research Studies for Children
08-21-08 FoxNews.com posted an important article about Marfan syndrome awareness and Michael Phelps on its website
Archived Press Releases
Pulitzer Prize-winning Series on Aortic Aneurysm and Dissection-
Kevin Helliker and Thomas M. Burton, reporters at The Wall Street Journal, were awarded the 2004 Pulitzer Prize for Explanatory Reporting for uncovering and explaining the surprising prevalence of aneurysms. The entire series can be accessed on The Wall Street Journal Online.
Check out our NMF News Blog
Have Heart 2012 Campaign
February is National Marfan Awareness Month and we’re trying to raise $60,000 in our 2012 Annual Have Heart Campaign to expand our outreach and education work all year long.
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Happy Holidays 2011
We wish you health and happiness in the new year. Start 2012 generously and donate to the National Marfan Foundation.
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Emergency Information Packet
Be prepared! New tool helps you compile infomation you will need in the event of an emergency.
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