Boards & Staff | The Marfan Foundation

Boards & Staff

We have a full complement of dedicated staff who work in our national headquarters in Port Washington, NY. They work under the guidance of our Board of Directors, which meet four times a year. Our Board of Directors is comprised of a diverse group of business leaders and long-time Foundation members. Several have Marfan syndrome or a related disorder or have a family member living with one of these conditions. They provide direction and oversight to the organization.

In addition, we have two boards of medical advisors. Our Professional Advisory Board is comprised of experts in the field of Marfan syndrome and related disorders who provide us with professional expertise and oversight of all medical information on the diagnosis and management of Marfan syndrome and related disorders. In addition, they advise us on research opportunities and priorities. Our Scientific Advisory Board is comprised of experts in the field of medical and scientific research. Its purpose is to evaluate and critique the proposals received through our research grant program.