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LATEST NEWS

July 14, 2014

The Marfan Foundation announced today that Co-Founder and CEO of Cash Money Records Ronald Williams and former Baylor University basketball standout and “NBA Draft Pick” Isaiah Austin are new spokespeople for the nonprofit, which works to create a

July 10, 2014

Global Genes honors the pioneering achievements of individuals and
corporations in the rare disease community

Isaiah Austin diagnosed with Marfan syndrome
June 22, 2014

PORT WASHINGTON, NY, June 22, 2014 -- The Marfan Foundation lauds the NBA for its thorough screening of players entering the upcoming draft and recognizing the signs of Marfan syndrome, a potentially fatal connective tissue disorder, in Baylo

June 19, 2014

PORT WASHINGTON, NY, June 19, 2014 — The Marfan Foundation and Johns Hopkins Hospital are co-hosting the 30th Annual Family Conference for individuals and families with Marfan syndrome and related disorders on July 10-13, 2014.

June 3, 2014

PORT WASHINGTON, NY, June 3, 2014 -- The Marfan Foundation has been awarded Charity Navigator’s 4-star rating, the highest ackno

April 22, 2014

PORT WASHINGTON, NY, April 18, 2014 -- The Marfan Foundation is thrilled to announce that it raised $1 million at its 14th Annual Heartworks Gala in New York City earlier this month.

March 26, 2014

PORT WASHINGTON, NY, March 26, 2014 – The Marfan Foundation is pleased to announce the addition of two experts on Marfan syndrome and related disorders to its Professional Advisory Board: Dr.

January 29, 2014

It was exactly 20 years ago that I embarked on the most rewarding journey in my professional life, when Priscilla Ciccariello, Chair Emeritus, asked me to serve as President & CEO of The Marfan Foundation.

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