| Page 2 | The Marfan Foundation

LATEST NEWS

May 11, 2017

The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome and related disorders advocate, you are invited to participate as we urge legislators to support responsible healthcare reform.

May 11, 2017

The Marfan Foundation announced today that it raised more than $1.2 million last night at its 17th Heartworks gala in New York City.

April 28, 2017

The Marfan Foundation is pleased to announce the addition of two staff members who will play a direct role with members of our Marfan syndrome and related disorders community.

April 13, 2017

The Marfan Foundation is honoring Karen Murray, the recently named CEO of Sequential Brands Group, with its first Inspiration of Excellence Award at its Heartworks gala on May 10, 2017, at the Grand Hyatt in New York City.

February 10, 2017

The 115th Congress and the incoming administration have made it a priority to “repeal and replace” the Patient Protection and Affordable Care Act (ACA).

January 31, 2017
Social media and grassroots events planned to raise awareness of the signs of Marfan and related disorders to increase early diagnosis and enhance quality of life of affected people.
January 27, 2017

Christina Gurnett, MD, PhD, Associate Professor of Neurology, Washington University School of Medicine, is the recipient of The Marfan Foundation’s 2017 Distinguished Research Award at the Foundation’s Heartworks St. Louis gala on March 4.

January 10, 2017

The Marfan Foundation is pleased to announce that Heidi Connolly, MD, is now the chair of its Professional Advisory Board.

December 5, 2016

The recording of our conference call about the physical activity guidelines for Marfan syndrome and related disorders is now available.

Pages